This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.

Thursday, January 17, 2013




January 17, 2013


DAY OF THE TESTS


Just got back from the battery of tests to make sure I don't have something that would prevent or put off the BMT.  Had 2 CTs, Echocardiogram, EKG, Chest X-Ray and Pulmonology test (don't know the name but it was the long version of the standard test). Echo test was interesting.  For those of who may not know it is an ultrasound exam of the heart.  To have the exam you have to lay in a position from which you can see the computer screen.  The tech I had liked to explain what I was seeing so I got an interactive lesson in heart function and evaluation.  I believe all the tests went well.  We find out for sure on the 29th.

I'm not feeling as scared as I was.  I'm still having trouble going to sleep at what most people consider a decent hour but when I was young (yesterday both in my mind and like the song) I was definitely a night owl.  That seems to me a trait of many architects, of which I am one. 

I've joined a couple of cancer sites on the interwebz and have "talked" to some others with this wonderful disease.  It seems with most of them the Drs. are going with chemo or "wait and see".  In my case while a lot of my numbers ( blood cells, counts, etc.) are OK my neutrophil count is on a steady decline.  There is also an issue with my cytogenics report.  I vaguely understand it.  If you want to discuss details then leave a comment and I'll get my wife to respond. She becoming quite fluent in doctorspeak. If I keep going with the disease long enough she will be licensed to treat CMML patients.

Pauline has been cleaning the kitchen all day so we are going out to eat again tonight. 
Any suggestions?
Boone
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