This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.

Friday, April 19, 2013

Day I don't know what, and counting

Pauline here.

These two a day trips wear on you, but after you see other people in the Infusion room that are there for 10 hours straight, you begin to feel lucky that "our" sessions only last about 2 hours each.

Boone is steadily dropping weight.  He tries, I swear, I know he's trying, but he doesn't eat enough to maintain his weight, much less gain weight.  I made him peanut butter cookies; as cookies go, not particularly sweet, so he likes them, especially the ones with pecans.  They are pretty good, I added extra sugar, an extra egg, and half a again as much butter as the recipe calls for.

Last night I made homemade chicken pot pie, with whole cream, and about a quarter pound of butter thrown in.  He ate a small serving.  Today he's down a pound from yesterday.

Today I get my turn to weigh in at my doctor...can't wait.  I'm sure I've gained about 10 pounds.

Boone is walking laps around the living room furniture, but not really able to increase the duration.  I'm so exhausted, I cannot imagine how tired he must be.  Or how tired he is of my constant nagging on him to eat.  Perhaps this is the lesson; eat, drink, and be fat....cause if you have to go through chemo your gonna need that weight.  Wasting Prevention.  Yeah that sounds good, i will see what my doc thinks about my theory.  I'm sure he will be thrilled.

Still I must say that the nurses here are the best.  At the clinic we are getting to know Steven.  He is possibly the hardest working nurse I've ever seen.  He's fast, and thorough, and he knows his stuff.  Pleasant to be around, but there is no time killing going on.  Whatever they pay him, it's not enough.

We will see the doctor team today.  It's like a pack of coyotes all running together.  They meet outside your room, discuss your case, then all come into the exam room...there's barely enough room for them all, then the whirlwind of questions, pokes, and prods and they are off to see the next patient.  We could all take efficiency lessons from these people, but then I guess they get to sleep at night.

Not much else to report until after the doctor flurry.

2 comments:

Anonymous said...

Steven is great! So glad you are getting to work with him. He was the one who gave me my First shot. He was impressive. You described him perfectly. I was tired just watching him work. But I loved how he treated me. So kind and so good at what he does.

Weight, too much, too little ... Why can't we have just want we need?

Keep making those cookies. I might have to send him some biscuits.

Praying daily for you both.

Love ya,
Donor

The Baby said...

He has always been the one not to gain weight. Text if you need anything. Remember Dave lives not far away.