Friday, July 28, 2013
PHOTOPHERSIS NUMBER 3
Again today the photopheresis treatment came off without a hitch. Treated the blood with light for 31 minutes this. You are supposed to wear sunglasses after the treatment but I haven't been and so far no headaches. I'm just not a big fan of sunglasses. That is my brother's department.
Treatment is being revised a bit. I'm going back on the clear liquid diet but also back on the full dose of steroids. I thanked Dr. S and pointed out that the NPO was OK after a day or so but the back and forth was tough. He agreed that was a bit cruel. Then he looked at the CD's my buddy from the office had brought by and we disgusts how many Jay-Z songs he knew vs. how many he could name (none).
They got me hooked back up with PT which is good. After three days on the ICU and four with not even any TPO I'm pretty weak. Haven't been for a walk yet but I' back on the rubber bands.
Not much else to tell which I guess is good. Here's hoping the food makes up for the higher dose of steroids. Hope Jeri and Amanda and the rest of you are doing well.
Boone.
7 comments:
keep hanging in there, dboonie. I need you. Like, right now. But, since that isn't possible, I have my friend Bud to help me out.
Hang in there. Be up there tomorrow. Glad you get more liquids.
Glad to hear you're doing so much better! Keep it up!! I know mom has enjoyed her time with you this week. As always, praying for you daily. Love Ya Uncle!
Yeah!!!!
All sounds very good, Boone. I'm so hopeful the photopheresis will be effective.
Thanks for mentioning us-- our brother Byron is doing well right now, at home, making those daily (almost) trips to UAB.
I would like to hear from Amanda-- been thinking about her.
Boone, Jeremy and I are so thankful you are back to blogging. We also would like tell you how thankful we are that you are sharing this journey with so many of us. We might not comment everyday but we are always logging in to see how your doing.
Jeremy hasn't worked in over a week. His WBC are elevated and his platelets are low.......causing him to be at risk of bruising and bleeding. He seems to be tired a lot. We're waiting on a donor to be found......the wait is emotionally draining and stressful. I'm fighting hard to make it through each day......This last year has been the hardest year of my life. My younger brother (32 yrs old) committed suicide May 25 2012 and then 59 days later my dad passed away. He was 57. We made it thru the 1yr anniversary of my brothers death and then got the news about Jeremy. As each day passes my anxiety increases. I'm trying to emotionally prepare for the anniversary of my dads death and the move to Seattle. Jeremy has been my rock this last year and now its my turn to be his rock. Some how we will find the strength to make it thru. Boone keep on trucking and doing what they say....sending positive thoughts your way! Jeri......Your a good sister I'm sure Byron is very thankful your around. Hugs to everyone, Amanda
Amanda, that is all very tough; so sorry to hear of all these difficult, difficult events, and so close together. I'll be keeping you and Jeremy, and your family, in my thoughts and prayers. Please do keep us posted on how things are going. Hugs back to you.
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