June 4, 2013
DAY 90 SOMETHNG
Boone here again. Sorry I haven't written lately. As you know things have been more down than up. I've been back in the hospital a bit over two weeks now and on NPO, nothing by mouth, for that time. At first that was awful but like everything else associated with disease you get used to it. I'm planning lots of food to eat and places to eat when I do get out. Of course like always when I get out is still a question. Most of my blood numbers are good. I don't feel bad most of the time but I am very tired. Today was especially bad on that count. I honestly did not think I would be able to walk at all. I did manage one lap, 1/10 mile, but that was it. At least it was something. This is now officially the hardest thing I have ever had to deal with. The steroids make you weak just when you need all the strength you can get.. Worse for me is the emotional part. I get embarrassed and angry with myself when I can't talk without the tears. I know its from the steroids but still.............
My sister, the Donor, is down to visit and she showed me the website with all the miles logged. I am most impressed, especially by you Stella.
I will get thru this there are no options. Sometimes at night I imagine the ball of energy generated by all your thoughts and prayers. I try to see it taking over and demolishing the GVHD. So thank you all for being there. If you've got any really good recipes please send them my way because as soon as I can I am go to eat every good thing I can lay hands on,
Boone
My journey through Chronic Myelomonocytic Leukemia. Or "How to Cure Psoriasis the Hard Way."
This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.
2 comments:
Oh Boone, I am so ashamed that I have not updated my miles before you looked. I promise I have more miles. Since I posted, I have done a grandson's graduation from Southeastern Louisiana University... Miles of walking that day and I thought of you with many of those steps. After graduation we went to Middendorf's at Manchac for Catfish. They have raised the building because they do not want to be flooded again. They now have many steps up to the dining area. I hung in there with all the young sixty year olds. We later went to my house for a family party. That seems to be what the graduates all want to do when they reach a new milestone which is great with me, they can continue coming to my house as long as they want. AND I have had a broken tooth which needed to have root canal. I sat in that dentist's chair and wondered what in the world was a ninety year old doing getting a root canal! The dentist did not think it strange at all for me to want a pretty smile. And I had to have laser done on my new cateract implants. That happens sometimes and so I was one of the lucky ones who had the implants causing a fuzzy vision. All that is taken care of now so I can complete my record of miles for you and get them sent in. Only thing I have facing me now is a visit to my primary care doctor for a six month check up which has stretched into nine months. I just have not found the time especially since I am in training for my only granddaughter's wedding in September. Speaking of unwelcome tears, Boone, I still need to fight back my tears at the thought of Mr Bobby not being with me any more but you and Pauline were such a strong pair of shoulders when I was so in need. I will never forget you for that. And Pauline even helped me with my back yard when the yard boy almost distroyed my Lantana that Mr Bobby had planted beside my back steps. She told me if he bothered the plant again I should take a broom to him. THAT WORKED!
Boone, it's great to hear from you. So sorry it's been so tough. I am keeping you in my prayers.
I bet you are looking forward to some delicious meals! I have a few family favorites (recipes) to send when you're ready.
Jeri
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