Day 90.
Dr. B. was on rounds again today. He came in smiling and it seemed like everything was ok. Boone's white count is over 5 (in the low normal range) his neutrophil count is over 3, which is fantastic. Still low on platelets and a bit anemic, but it's those infection fighters we are thrilled to see going upward.
Dr. B. didn't spend much time in the room, gave me a long glance that made me feel like things were moving in the right direction.
When he went out the LPN came over to listen to Boone's chest. He asked her something I couldn't make out, and her response was "You are not responding as well as we would like..." sent Boone into a tail spin. Say what? I thought that was the last protocol, the end of the line. Sent me spinning too. I could have choked her. Then I found out that Boone is reading my posts...Ummm shouldn't have posted about my talk with Dr. B. in the hall. Just shouldn't have done it. Boone said he knew anyway.
This evening the pathology report on the bacteria in his lungs came back. Boone was confused and told me it was E Boli, to which my response would be to run like hell, if I hadn't already heard from his nurse that it is E Coli. Not good, but at least it's not E Boli. I guess things could be worse. We'd have the CDC on us like ducks on a June bug.
But I guess there are always other drugs, and at least E Coli is common enough everyone knows what to do about it.
Nurse L got Boone up and walked him today with the PT lady. I could have helped, but I opted for a nap instead. Its extremely tiring and stressful to be trying to move, take care of two houses and critters, and be at the hospital as much as possible; not to mention facing the unknown everyday.
The popsicle was orange today. He was hoping for two, but no, only one per day.
My journey through Chronic Myelomonocytic Leukemia. Or "How to Cure Psoriasis the Hard Way."
This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.
4 comments:
And so Boone keeps trading one problem for another. At least he is now trading up. That's progress. I will never again look at a popsicle the same.
Cute, Stella. Hooray for progress!
Glad to hear a glimmer of good news. Praying (begging for you to stay here with us) non-stop.
Hang in there you two. Many people who don't know you are thinking and praying for you. You have miles coming your way too. I have to add in all the miles that have come the last couple of weeks.
Love you much. I have plenty more cells to give if you need them.
Donor
Go Big Orange!
Post a Comment