Pauline
here.
(Sorry about that title line...Blogger wouldn't let me post without a title. grrrr.)
Actually
I believe this is day 79. March has 31 days minus the1st which
was day Zero. April has 30 days and now this is May 19. If my
math is correct, 30+ 30+ 19 = 79.
Day
79 was definitely better than day 77.
Day
77 was the normal 7:15 AM clinic visit. Boone was feeling
pretty bad; after all he had the colonoscopy the day before. As
we all know there is the day of fasting, and the day of the
procedure. Not much eating happened on the scoping day, he just
didn't feel well enough to eat.
When
we arrived at the clinic, there was no one at home. Peculiar.
I knocked on the door, knocked on the back door, no response.
I called their number and got a recording saying they were
closed and didn't open until 8 AM. Peculiar, our appointments
are always before 7:30. Boone was miserable. I went
outside, I've forgotten why, but in the process I ran into two other
patients and spouses that were there for early appointments. One
of the spouses, who is a nurse took charge and went somewhere in the
dark halls of SCCI and found a lone nurse lurking in the office.
By
the time she was coming back with the good news, I had retrieved the
wheelchair that I had forgotten about, and had gotten Boone in it.
We headed for the elevator, and the suddenly in front of us was Dr.
S. looking very dapper in baby blue. (It highlights his blue
eyes.) He had taken one of the patients who's wife was
struggling with her large husband, gotten him in his wheelchair and
was pushing him up to the clinic. I followed him pushing Boone
in his wheelchair. He was not happy about the mixup, and
promised me they really have their ducks in a row....apparently they
missed calling 3 patients to reschedule to later visits.
By
this time, Boone was slumped over with his head in his hands trying
to not feel so sick. I was visiting with the other couple in
the room. At one point the patient pulled his mask down...I had
no idea he looked like that! Talked to him many times, never
saw anything but eyes. HIs wife, the nurse was loaded with all
sorts of info, like one man that had been in the hospital on the BMT
ward for over a year...OMG. I can't even begin to imagine.
After
a short wait, we were ushered back to the exam room. Boone
weighed in at a strapping 116 pounds. (Oh how I wish I could
weigh that little again - it only happened for 1 day, but it was
great!)
His
thighs are thinner than my forearms. They immediately started
up an IV of saline. That's an hour drip. The results of
the colonoscopy were supposed to have been sent to Dr. S., but the
Pathologist hadn't sent them up yet.
Boone
finished up his drip and we went home. Both of us were
exhausted and went to bed to catch some z's. As always, I
turned the ringer off on my phone. After about 5 minutes I
opened my eyes and decided to check the phone. There were 2
messages from an unknown number within a couple minutes of each
other; so I called back. It was the LPN at the clinic. She
said Dr. S. wanted Boone back in the office ASAP. Bring a
bag....
I
went to wake Boone up to tell him. He broke down. He knew
they would put him in the hospital.
They
said he had an infection in his GI tract and had to be admitted back
onto the ward. Boone was miserable. Sick. Unhappy. Tired.
They
set up a CT scan that required Boone to drink 2 quarts of that nasty
gut cleaner...again. I left the hospital to get the dogs &
Leukka and head to the farm. Nothing more I could do for Boone. At
least the dogs and cat could run a bit out there.
The
infection has not yet been specifically identified. A specialist is
coming in tomorrow to see if she can figure it out. They put Boone
on IV food at the rate of 7000 calories per day. He's gained a pound
already.
He
slept pretty much all day Saturday, but today, he was feeling better.
His skin is so silky smooth. No psoriasis to be seen. He was
rewarded this afternoon by being put on soft foods rather than being
NPO. Ice cream.
We
don't know yet the criteria for release. Kill the bug? Gain X
amount of weight? Or just feeling much better and eating?
He's
asking for his book and reading glasses. Excellent.
4 comments:
Hi Boone and Pauline, just read your blog and am feeling your pain as well as your victories. I am Jeri's sister and it is our brother who also has cmml and will undergo stem cell transplant soon. Thank you for sharing your experience. It means a lot to us to have a "friend" out there who has already been through this procedure. I so wish you well. Though a stranger, I identify with so many of your trials as our family has already endured similar and like circumstances. Prayers and well wishes from Alabama, Jan
So glad he is better. When I was there, he just wanted to sleep. Could tell he felt like crap. Let me knowwhat I can do.
Sorry for the hospital stay AGAIN, but I also just keep thinking, I AM SO GLAD HE IS HERE!!!. Rest up big brother. The day you are Cured will be here soon. I am excited to hear that your skin is cured! Mine is getting worse not better so I was afraid it would not cure. Small celebrations are better than no celebrations.
Love you,
Donor
Quite the adventure this has become for you guys. I really feel for you both.
I hope he meets whichever criteria is decided upon for release and does so soon.
Please give him my best. Thoughts and prayers for you both.
-B
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