This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.

Friday, May 24, 2013

Day 84.

Pauline here again.

Boone is looking better.  He weighed in at 127 pounds this morning.  The IV bag food must be really good stuff.  They put him back on NPO.  No food hoping his stomach and intestines will settle down.

Unfortunately, the verdict appears to e Graft vs Host Disease (GVHD).  I had thought that an infection would be worse than the GVHD, but by the looks on the doctor's face, I'm thinking the GVHD is more worrisome.  My doctor said if it had been a viral infection, that those are very hard to fight.  So yin and yang I guess.

It appears right now that Boone may be in the hospital for a while.  He's been in a week now, and the only thing we've heard is maybe a week or two more, maybe three.  ( Maybe more ?).  I hate that Boone is missing his last opportunity to be in the condo.  It has to be ready to show; as in empty and cleaned by June 25.

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Doc just came in.  Definitely GVHD.  They put him on steroids yesterday just in case.  Doc said he's glad he went ahead it did it before the lab results were back.  Now Boone is still NPO, they must tweak the steroids to get the right dosage, then hopefully to wean him off asap.  Now he's acting like if Boone can get off the IV bag, he might can go home in a week or so.  I do hope so.

Doc also said he needs visitors, especially at night to help with pulling him back to reality from the lucid dreams.  I suppose this is the classic "sundowning".   Come visit if you can.

All in all, he is much better. He's reading and watching Roadrunner cartoons.

Beep beep!

1 comment:

Jeri said...

Ah, so glad he seems to be getting better; hoping for good news tomorrow or the next day.