This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.

Wednesday, May 1, 2013


May 1, 2013

DAY 70 – DID A RECOUNT

 

I figured out at the Dr. the other day that I have miscounted as noted above.  That wa nice.  Otherwise things are well but could be better.   Twice now I have been given days off from the Dr and every time something happens.  A couple of weeks ago Dr. B put me on a Monday-Wednesday-Friday schedule but then called that afternoon to put me on two-a-days.  Monday Dr.S put me on a Tuesday-Friday schedule, even better. Then last night I had blood in my urine again so it was back to the Dr. this morning.  They don’t seem overly concerned but want to get this under control lest I wind up back in the hospital. This is all new to me and I am a bit nervous.  Headed back to the Dr. in the morning.

I also learned that diarrhea is a major sign of graft vs. host disease and that wearing a colostomy bag makes the diarrhea harder to detect.   Something else to be nervous about.  But still so far so good.  Things mostly do seem to be getting better.  Still very tired.  In fact I think is tis nap time now.

Thanks for stopping by.

 

Boone

6 comments:

Anonymous said...

Eat your chocolate.

Anonymous said...

So glad to hear from you again. Nurse C at donation told me about the diarrhea possibility.
Just decide that naps are good. S is like Granddad. A cat nap every day since we have been together.
When I got home from being with you, I had to take a nap every day for two weeks. And you saw me sleep the entire day after the donation. Just tell yourself that naps are good. If that is the down side. I am thankful. So glad you are alive to complain about naps.

Love you much,
Donor

The Baby said...

Good to hear from you. Hope to stop by soon.

Stella said...

This sounds like everything you are reporting is within the realm of "perhaps this will happen" and they are aware of the possibilities and how to stay ahead of things. Admit it, you are coming along fine, just not as fast as you want. Gosh, the body is a wonderful thing and think of how much this group of doctors know. You're in good hands. And they are ever mindful of your needs. Yes to naps!

Anonymous said...

Keep it up man! You seem to be headed in the right direction. We continue to pray and think of you guys often. Hope to get down to see you sometime. Take your naps and eat your food. Talk to you soon.

- B

Jeri said...

Good to hear from you! Hang in there! One day soon, all this difficulty will be a memory.