This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.

Tuesday, May 7, 2013


May7, 2013

DRIVING MR. BOONE


Yesterday I drove for the first time in months.  By myself.  Pauline may feel like the mother of a teenager.  It was an easy drive to the clinic and back but it’s another step.   I’m still skinny as a rail but I was up 2 pounds at the weigh-in today.  That’s after holding steady for three days at 119 pounds.  I’ve never had a weight problem, till now, but this is ridiculous. 

Still, day by day I’m getting stronger.  My blood numbers are good.  I’m on an often interrupted Tuesday/Saturday schedule.  And the last couple of times I have not had to stay after class for a IV of something with a long unpronounceable name.  I think the mid-day nap may be becoming part habit instead of all disease related.  I like naps.  Heck I like sleeping.  Maybe that’s why I kept my eyes closed so much in the hospital, especially the rough spots; treating the whole thing like a dream or nightmare.  Both are over when you wake and neither stays in your memory more than minutes, usually.

In my case Pauline is my memory for the dreamares and she has told me some, but I suspect not all, of them.  She told me of a night when I was dreaming that I was talking to major client on the phone. She knew this because I was talking out loud, quite distinctly and calling him by name. Being bored, Pauline decided to see if she could play the part of Mr. S.  And she did. I should note that Pauline knows the man in question and, in fact, told him this story just a couple of days ago. As Mr. S. she told me that I was their favorite architect and that they were giving me a huge new project.  Heck they like me so much they might just give me all their projects.   I’m told that during the call I had my chest puffed out and sported a grin that would be the envy of the Cheshire Cat.

Of course not all the stories are so good, especially the ones from the trips to the ICU.  That got pretty rough a couple of times.  Pauline told me the other night that at one point she thought I was about to do die. Maybe it was the night of the CPR I still feel in my chest.  I don’t know.   She was convinced enough that she actually told me to go if I had to.  She told me that she would be alright.  Jesus.  I can’t imagine the situation being reversed. I’ve tried.  I cannot imagine it.

I am so glad that I have no memory of most of that part of my stay.  And I’m so glad I have Pauline.

 

Boone

 

5 comments:

Anonymous said...

AWWWW....Ain't you sweet.

Stella said...

Boone, my heart is pounding while reading this latest. The entry I have been praying for. Tonight the prayer will be there but [dare I say this?] it will be a prayer of thanksgining and praise. Yes, this is what sleep can do for you, heal and heal. Pauline, "You go Girl!!".

Anonymous said...

Good job on the weight gain! Keep eating!!

Anonymous said...

Great job my friend. Keep it up. It is quite amazing to hear you on this side of all that. I know it is a long process but we are all glad to see you doing as well as you are. Very thankful.

What a dream that was to get all the work of such a client. If only one were so lucky, haha.

Anyhow, take care of yourself, and keep in touch as best you can. I hope we can make it down this summer to visit sometime. Tell Pauline we said hi and that she is awesome for doing all she has done and to have done it as well as she has.

Later boss.

-B

Jeri said...

Great to hear! So happy for your progress.