Friday, June 14, 2013
TOMORROW WE TRY AGAIN
Dr. S and the entourage came by this morning and the decision is to try again tomorrow with the clear liquid diet. This time with out the apple juice as that may be too much. The goal is three meals and see if some of it will stay inside. I'm pretty you can have some idea of how much I want that too happen. Until that happens there's no progress.
I managed 2.5 laps around the unit today. That is a lap progress but still feels lame because I used to do 10 with no trouble. This part of my journey though is at a longer slower pace. Exercise is the only thing that I can do to help with the healing so I'm doing what I can and I'll get that 10 laps back before too long. In bed I do some rubber band exercises and so far I have only shot myself once and show the smaller band across the room once.
Sorry there's is not much else to tell. Days are very routine here, especially without meals. I sleep, in hospital terms meaning interrupted, till around 8 or 9 and wait for the entourage to come by. For a very few minutes we talk about where we are, or are not. I finally gave in to taking a medicine for anxiety and that has helped a lot with those conversations. Typically after that is when I go for a walk around the unit. Pauline walks with me and pushes the IV pole. I'm still using a walker but plan to take over the pole soon. Everything is baby steps here.
I always hope somebody is making coffee as I pass by the machine. They have pretty lousy coffee here as I remember but it still smells so good. I miss my coffee. Sometimes I nap after the walk. Sometimes I pull over the laptop and check on the world. I hardly ever turn on the TV. Later after varies a bit, nap, blog, rubber bandacise, stare at the wall. I have a bicycle in the room but I need help getting in an out because is sits really low so I don't get to it as much as I should. Then H and R come by most every evening. A great blessing to me. If not I read or compute or just go to sleep early. It's odd but it doesn't take long to get used to the routine. Meals help put a more regular day in place but I've learned to live without it.
I want to say thank you to all of you who are following this blog and tell all of you who leave comments how much they mean to me. I check several times a day just in hope that there is a new comment. Also it truly amazes me that people from a number of countries have visited. I expected the friends in Costa Rica but some folks from Germany, Russia, the Ukraine, Vietnam and other countries have stopped by as well. Please keep checking by and if you have the urge please leave a comment. I think they help reinforce that ball of energy that I draw from all of your thoughts and prayers..
Thank you for thinking of me and please extend that energy to Jeri, Jan and Amanda and all the other families that are being forced along similar journeys.
Boone
My journey through Chronic Myelomonocytic Leukemia. Or "How to Cure Psoriasis the Hard Way."
This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.
6 comments:
Continually praying for you Uncle Boone. G.W and I plan to stop by to visit this weekend.
Hey there Boone. I'm pals with Harold and Randy. Harold shared your blog. Here is a share that my brother posted today. It reminds me more of Wolf Mother, than Hendrix, but I see the inclination to go there. Apples and oranges and brothers, and best wishes to you,
lee.
http://youtu.be/ekq4ZMgMa1Q
I am so glad you are feeling better. I sure enjoyed my visit. I don't know who it helped more you or me. I just know that I sure felt better after the days with you.
Love you much big brother.
(now I better get some sleep, don't know why I am so awake that this hour. oh well.
D
You and Pauline both have the best way of sharing all the ups and downs of this journey. Through what you've written we've come to feel that we know you; this whole crazy experience is certainly one that can create a bond of friendship.
I sure hope your next meals stay where they're supposed to stay! As long as they're supposed to stay there! Continuing to pray for your continued recovery.
Donor, I know what you mean. I just have to lay eyes on my brother sometimes. The visits with him have helped me more than him many times, I'm sure.
Hi Boone, Good job getting some exercise today. Keep it up....Jeremy met with the doctor today and it was decided his best option will be a stem cell transplant. Nobody in his family is a match. So now we wait until they find a donor. Your in our thoughts and prayers. Good luck with the diet tomorrow.
Amanda
Hey Boone, Good morning from CR. So glad you are making progress, just keep it up and you and Pauline will be back down here before you know it. You will enjoy this, the couple from Indiana that I played music with decided to go in the pot business, went a little overboard with plants, grow lights etc, and got themselves busted. Got his picture in the Tico Times. Must have had a good lawyer, not in jail. We miss you both so much....
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