Friday, June 21, 2103
FOUR-FIFTEEN PM
The port for the photopheresis was found bleeding late this morning. Pretty bad actually. Long enough that it had some large blood clots. After a lot of new bandages, some ice and some pressure it seems to have stopped but still looks nasty. They have decided not to change the dressing until after the treatment at about 4 PM so that it doesn't start bleeding again. I glad because I'm anxious to try the new procedure. I'd never hear of it before. As I understand it they take out some white blood cells expose them to light and put them back. Guess I'll learn the details shortly. That will be good because we've never talked about this procedure in the office, did I mention I'm an Architect, so I can pass on some new info. That is provided I get back there. Not sure about that but I sure as hell want the chance and the choice. LSM if you are reading this I am planning on coming back. Just so you know.
Dr. B had the rounds today. Since I'm still getting blood in my stool he put me back on NPO. I do with that would settle down. Not eating at all is not a major deal but going back and forth really leaves me hungry. I'd almost rather not eat, almost.
I'll try to pass on the info about the photopheresis later.
Boone
6 comments:
My silence means nothing except I am trying to take it all in. Somehow I know that you "can handle this job all by yourself". I read what you say and I know sooner or later I will google this procedure. Just not yet. I usually stick my toes into a new venture first and then as I go along, I learn bits and pieces about it. I will get up to speed but as of now I'm thinking what a great person you are with the patience and understanding as you continue to help the medical staff take care of you. That is so important, you know. My guess is that Pauline is away ahead of both of us with the understanding of what they are doing for treatment. Both of you continue to stay strong and face this with courage as you have been doing. Huge job but you are up to it!
Hey Boone, ( see I did it!)
Sorry I have not been reading and replying lately. It has been a busy week with this new job. Good, but Busier than I thought I would be. So I am behind on your blog. I'm up to speed now.
Too much to catch up on, so this is taking a couple of comment boxes. I am so happy to hear your comments to me on WITH APOLOGIES TO SOME OF YOU. No apologies needed. I think you described it correctly. I wish God would condemn this awful cancer out of this life too. I have way too many friends suffering with this as we speak. G told me he called you. His outcome is as scary as yours. Watching the two of you suffering makes me yell at God about it.
Why do I go to Church? A great questions, believe it or not, Steve and I often discuss this. My answer is simply "Encouragement". I know you are a good man. For me, church is a place to get with people who are, like you, are good but, weekly get together to encourage each other to stay good. The place where I go to church is very genuine. Nothing fake there like at some churches. We gather to encourage each other and to support each other in life's trouble. It's not a "have to", it's a "I want to go see my friends." It sure is not a ritual deal for me. That is just too shallow for me to stomach. It is very much a relationship I have with these people. Thanks for asking, and yep, I'm still begging God to let us keep you here for about 20 more years. Love you, Donor Girl
Dude. I told you what I think about everything tonight while you laid in the ICU (again). So when you get back to reality I will tell you again. Please please fight hard buddy. BS
Hey Boone,
I was interested to read in your blog from yesterday afternoon that you will be bringing info back to the office about your current procedure. You know as well as I do that we are either blessed or cursed (I frankly suspect the latter) with the inability to look at something as just say, “ oh yah, that nice”. Oh no. We have to figure how it works and what’s the flow and are the proportions right and naturally what did it cost to construct!!! As you begin to feel better I bet you also begin to look at things around you in that very way. The folks that did your unit might profit greatly from your observations and experiences. No one could possibly be more qualified than you are. I am still “lurking” out here and will be until you are out of there. So, hang in there and keep fighting the good fight… tlsiii
Boone, we are definitely counting on you coming back. You've already been away too long and we miss you! Your office remains decorated with pink (somewhat deflated) balloons that need your attention. Get yourself out of there and the rest of your lunches are on us! (You've GOT to take me up on that!) LSM
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