Monday, June 17, 2013
A PHIL MICKELSON KIND OF DAY
Dr. B has the duty of rounds this week. He did not exactly bring tidings of great joy. The clear diet is still flowing through with none of the liquid going to the urinary tract. So guess what, back to NPO, no food or water. They are going to drop the steroids by 25% and in a couple of days I get to try food again. It feels like I'm back almost to square one. It's a real blow to me but I'm pulling it back together. Can't say I feel like walking laps. I feel more like wallowing in the bed and playing sad songs on the laptop but I may just drink the Ensure left over from breakfast in defiance. Not sure yet. Hope you all are having better days.
Boone
P.S. I gave up the Ensure. I'm giving this bastard disease any chances that I can prevent.
4 comments:
Your P.S. is the way to go! Wallowing never gets you anywhere... I know I've tried that too. Listening to sad songs can't hurt. No one ever said you could not feel sad or be angry so long as you get it out of your system and then, "Get with the program, Bill". I'm home from Therapy. Not many people were there this morning- everyone was on vacation. A neighbor took a picture of me on the treadmill. Now THAT I must see. She is going to Virginia to visit with her two daughters who live there. One is a PT. Explains why a picture of me is a must. I watched the daughter grow up and listened to her PT dreams.
Keep biting, scratching and fight dirty. Cancer doesn't recognize honorable rules of engagement so sucker punch away. Cancer tried some nasty stuff with me today too but I'd say you we're up against more formidable odds than me.
Sorry-- not fun. I was reading in some forums people who had gvhd in the gut, some currently and some had gotten past it. Those said it was a indeed tedious process, but finally they were able to eat and enjoy food again. I look forward to reading about that here on your blog one fine day.
I like your taste of music........and the spaghetti monster line definitely got a chuckle out of me. I like to think we have "down" days so we can really appreciate the good days. I was happy to hear about the time you spent outside......fresh air is an attitude adjustment. Best of luck tomorrow.......your friend Amanda
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