This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.

Saturday, June 29, 2013

Saturday, June 29, 2013
FAMILIY DAY AT THE HOSPITAL

My donor sister has been in town since my trip to the ICU and visiting every day.  Her husband has driven down to take her back to Wisconsin.  Today is my baby sister and her husbands 28th anniversary.  The later are flying out west today and the former are taking them to the airport so they came by to visit.  My brother and his husband came by at the same time. I can't remember the last time we were are in the same room together.  It was quite nice.  Kathi had been by earlier but had to leave before they all arrived.  She is still swamped with taking care of the move to the farm by herself.  It is wearing her out and there is nothing I can do to help.  I feel bad about that.
It is the weekend so there is nothing new on the medical front.  I'm still NPO until Monday and still scheduled tor a photopheresis treatment Monday morning.  That means more blood and platelets early Monday morning.  Amanda I fully understand about the platelets and bruising. My platelets have been running as low as 20 so I have large bruises on my arms from all the needle sticks.  The platelet count needs to  be 50 for the photopheresis.  Also I'm so sorry to hear about the recent deaths in your family.  No one should have to put up with that much in one year, but I guess lots of people do and have to figure out a way to cope.  I hope this, Jeri's blog and others help us all get though it a little easier.
Rest easy my friends.

Boone

6 comments:

Anonymous said...

Sending you a quick hello on a sunny Sunday. I'm glad you have had family visiting, and it was nice to see pics on Harold's fb page. Best wishes for the week ahead, Boone.
lee.

Anonymous said...

Boone, I hope you have a good day. Amanda

Jeri said...

Hope all is well today! It's a great thing to get all the siblings together, isn't it? We've found through this ordeal how much it means to hang on tight to each other, including when things ease up. We need each other. A friend posted shared this link to a great article in the NY Times about "the gift of siblings". Really good!

http://www.nytimes.com/2013/05/26/opinion/sunday/bruni-the-gift-of-siblings.html?pagewanted=all&_r=1&

Stella said...

Hi! I'm still here also. I'm pleased to look through the keyhole for a glimpse at the rest of your family. I'm trying to tidy up my house getting ready for an annual visit from my daughter who lives far away. My heart races at the thought of her coming for a while. Sure, she knows about you, has for years. I'm working in the bathroom right now... maybe pushing the mop can count for some of Donor Girl's miles. hmm.

Anonymous said...

Yes Stella,
all house keeping counts for miles. I have a homemaker who sends those in -- 15 minutes = 1 mile.

over 1.5 million and growing with over 60 people playing from many states( I need to count the states).

The campers at my home church camp just collected their miles. They sent in over 7000 miles for their 14 day camp session.

d

The Baby said...

Was a good visit !! Love ya