This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.

Thursday, June 20, 2013

Thursday, June 20, 2013
TIRED, TIRED, TIRED

I think I have fully completed the conversion to night person.  I slept soundly last night and most of the day. The nurse was having a busy day so I got a nice sponge bath but no walking today.  The procedure to insert the new lines for the photopheresis kept getting delayed.  I finally got to imaging about noon but they were still swamped so it took the better part of another hour to get a room so I didn't get back to my room until almost five.  But at least it was a road trip, some time away from the same old room.  They did the procedure under sedation in a R/F room and everything went fine.  I have two new lines in my chest under my neck.   One with a red cap, the other blue.  Artery and vein.  Tomorrow I get another road trip for the first treatment.  I'm quite interested to see exactly how it's done. Two of the more senior nurses tell me that they have seen the procedure work so I've got my hopes up a bit.  Maybe this time we see some progress.  Maybe not but I resigned myself to the fact that that is the way things are, at least for now  I have just got to hold out and wait for the solution, at least the first steps of one to occur. 
I hope things are going well for my fellow travelers.  We'll have to figure out a way to meet for a celebration dinner after our battles are won.  I'll buy.

Boone
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1 comment:

Anonymous said...

Dude. Keep a positive attitude for sure. This sucks I know. I know that once you are through all of this there will be so many more stories to tell over drinks in the gulch or on the farm or in CR. I don't know much about this treatment yet so I will look it up. But sounds like the tough part is over. Inserting the lines that is

on another note we got another project an mob for the ft
worth site can I bring you a computer and you work on it from there? no other big news to report or at least that I would put on writing traveling this week was good. meetings
went well and everyone is happy. T knocked it out of the park as always. Me well I am dealing with five or six different agencies. FUN

It's hard to talk in code here so I will probably start texting you more.

Hang in there as always, you know I love ya man. Wouldn't it be so much more fun to be at that bar in Denver?

BS

June 20, 2013 at 10:59 PM

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