Tuesday, June 18, 2013
I'M NOT QUITE SURE WHERE THIS IS GOING
I'm not sure what happened yesterday afternoon. I never excepted this blog to go quite so personal. I'm not an extrovert. While I have very definite opinions on lots of subjects I'm not one to go spouting them off, especially in a public forum where I know folks like my friend, fellow transplant recipient and client Mr. S read what I write. What am I thinking?
I guess what I'm thinking is I have nothing to loose. My friend could kick me off the account but for that to happen I have to be out of here and cured. That is a trade I'll jump one. Some of you, including ones I love, my take some offense or at least cringe at something I say but I'm sure the love will remain. In any case I have a feeling things may get a bit deeper around here. It's a hard battle so I may be doing a lot of screaming.
Regarding the comments from the last post please allow me a few direct responses.
Stella, you never cease to amaze me. Very high on my bucket list now is a visit to your house. We promise to call first. The song I was thinking about is "When September Ends". It is a acoustic number written and sung by Billy Joe Armstrong after his father passed. You can easily find the video on the interwebz.
Bmax I do miss our discussions. Not to many folks are up to debates anymore, particularly civil ones. Very much looking forward to the next time we meet.
TLS I had no idea that you were lurking out there. Thanks for that last batch of music. Are you working on any new stuff of your own? I'd love to hear it if you are. Thanks for being there my friend and teacher.
And Donor Girl. I'm glad you believe in yelling at God. I have done it my self. For some reason I feel compelled to let you and the others out there know that if I was a believer I would not behave any differently than I do now. And I believe it is possible that one day I open my eyes and find myself standing before God, the God you believe in. I will be very surprised but I know from quantum physics that lots of surprising things are possible not matter how improbable. If I take the Bible literally then that God will condemn me to Hell, not upon the basis of how I acted but because I didn't follow some ritual (I know I was baptized but I don't believe that one counts anymore) and didn't acknowledge him/her to be my king. Condemning me to Hell on that basis seems rather egotistical and childish, not something that a god would do. Such a statement deserves much more detail but this doesn't seem to be the time and place. I don't want it to come off as just me being a smartass.
I've had a number of debates on the subject of religion and enjoyed every one. One of my standard question is "Why do you go to church?". The best answer I ever got was from friend RDF who just returned from a mission trip to Haiti. "Because it makes me feel better." No pretense, no the Bible told me to, no I'm supposed to. That answer I understand.
I'll try to get off my soapbox before I really do offend someone. This just seemed to be something I needed to say. All of you out there stay well. If you know someone in a battle like mine please visit them, send them cards, whatever you can do to help them get thru the day because believe me hospital days can get very long. If they can get them to start a blog. I can't tell you how much this has helped me cope. As for me, drop me a comment. It makes my day, especially a new commenter.
Stay tuned. I can't wait to see what I write next.
Boone
My journey through Chronic Myelomonocytic Leukemia. Or "How to Cure Psoriasis the Hard Way."
This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.
7 comments:
I feel like a stalker. I have been following your blog since day one. We have a mutual friend. I am so pleased to see you ready and willing to fight the ugly disease. I hope you continue this fight. Kick it's ass. Kick it for all of the people that have not been able to. Kick it for all of the people up there with you. Kick it hard. And when you do I hope that I am able to meet you and shake your hand.
Ahhh! You are reminding me more and more about why I came to love you and Pauline at a critical time in our lives. Starting with music first, I will get back to you when I find the one mentioned, for now, I need to tell you that for some reason yesterday I spent time listening to John Denver and Annie's Song. After you telling about the comforting interlude which calmed you I wanted to tell you about my DVD except for one word I did not want to send, if I could change that word, I would tell you about it. Not being able to change it, consider the above has not having been written. Smile
Hey bud. I keep up with you. I'm riding in a car between Houston and Dallas. T and client BS are in the front seat talking and I'm back here reading your stuff. Chuckling. Glad you can vent on here and you of all people know my issues with the while God thing too. I picture your god more of a place where to the tune of "strawberry fields" plays over and over. Except the strawberry is replaced by another agriculturally grown piece of vegetation used for medesional purposes. Lol. I don't know what I'm saying. We have another 100 miles or so to go. Maybe ill nap. BS
Friend of a friend. Thanks for the note. I look forward to meeting you. I plan on lots if eating out so pick a place and we'll try it out.
Man O man, you know how to get to the heart of the matter! First I found the words, then the music, hmm, tonight the video! Yeah that did it. I think I need to start paying more attention to the emotional music of these later generations. The more we evolve, the more we remain the same. The more we remain the same. I hope you are having a good night.
Love this Stella person. Hope to meet her one day.
I know you, not as well as I know Pauline, but I know you and I think about you both often and I enjoy reading your posts.
If you both ever feel up to it, you are welcome to come and float on a pontoon on an uninhabited lake in the Northwoods on a warm, lazy day. It is very relaxing and we always have fun.
Our door is always open.
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