This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.

Wednesday, March 20, 2013

Hi Pauline here..  T + 19 and counting.

Boone is still very groggy and sleepy.  I don't see any more signs of him being delusional, except it appears he pulled out one of his IVs.  But it could have just been from rolling around, I guess.

He ate a little bowl of peaches for me this morning.  Coffee; that he used to love and would gross out over it if there was more than 1/2 t sugar per cup, insisted on 4 sugars, and it was still not something he could choke down.  I tried the chocolate Ensure.  He had no problem with it before, but now it's too nasty tasting for him.  Three swallows was all he would do.

They have started to feed him by IV.  At least that way we know he's getting some nourishment.

He is pretty down in the dumps emotionally.   He doesn't really seem to understand why he is having so much trouble.   They have ordered PT to come get him up and about.  His white board says they want 10 heel slides, 10 snow angels, and 20 ankle pumps.  This in addition to walking 10 laps around the ward.  Not gonna happen today...  Maybe tomorrow...

Vitals still good.  WBC holding at 0.2.  No neutrophils as of yet...maybe tomorrow...

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