Pauline here. Transplant day + 10
Boone is still receiving the chemo to suppress his immune system. He is very tired and gets sick from time to time. The amount of drugs they are pumping into him is amazing. Pills for everything, plus the chemo, and again today more platelets, more antibiotics.
This morning, he was running a fever. The forehead scan said 100.5 but the oral thermometer said it was over 101. He has some fluid build up in his lower left lung. Nurse Goodbody said she would get with the doctors, and would start him on even more meds to make sure they nip this issue in the bud.
If we were home, I'd be brining him to the ER right now. I get chest pains just thinking about it.
As you probably guessed, Boone hasn't written anything because he is just too tired to sit at the computer to do it. According the nurse, Boone gets up and about a little better when I'm not here. Sure, he has to fend for himself more. I'm not here to fetch ice, or a spoon, or the vomit bucket.
This morning, he set off the oxygen alarm; his oxygen level was dipping below 90, so he now has the O2 line in his nose.
Our visits have become more where I lay down in his bed beside him while he sleeps and hallucinates. Actually, these are good visits, I get to touch him; always with mask on and breathing in the opposite direction, of course. The rest of the time I fiddle with the computer and watch him sleep.
His sleep is giving him no rest however, because he is always talking, or trying to do something with his hands. This morning he called Tweak to come to him; said she was a good girl, then proceeded to stroke and pet me.
Sometimes it's good to be the dog.
7 comments:
Thank you for writing, Pauline, we all care.
Yes, Pauline, thanks for writing. Hope you guys are close to turning that wonderful corner!
We are thinking of you every minute of the day. I hope he says something funny to give you a good laugh.
Ann
Thoughts and prayers from Blacksburg. Well wishes for a corner turned soon. Miss you guys.
- B
Praying for you tonight. I hope you can get some rest.
Donor
OK Mr. Gregory - I finally went to see you today to helpl Pauline a bit.....J was there too BTW. Dude we have to get you a facial and a head wax.....oh and I will have to call you papa smurf for a while.. (inside joke-mouth-tongue) Also a speech therapist since wost of what you said I think was from another planet. That suits you - out in space a bit. OK my nervous energy is out now. You know I am thinking constantly and have all the faith in the world you are gonna kick this thing hard. So even though I know you won't be reading for a while I leave this for you when you wake up. I am betting the first lucid words from your mouth will be, "Damn that was a Bitch!"
Miss you buddy! See you soon, Your Protégé. BS
Hey boss, wanted to stop by and leave a few words. Sarah and I are thinking about you and praying constantly. Like the others have said, we have complete faith you will beat this and I for one cannot wait to hear your very colorful description of it as you look back on it later on. Keep fighting, and do everything you need to do to get past this most difficult stage.
Pauline, words can't describe how much we are feeling for you right now. I cannot imagine the difficulties with which you cope day in and day out. Please know how much we care and think of both you and Boone. Hang in there and let us know if there is anything more we can do.
Much love to you both.
- B
Post a Comment