This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.

Sunday, March 17, 2013

Transplant day +16 continued.  (Blogger issue.)


He then got so agrevated about his hands he started trying to swing at stuff.  That was ok as long as someone was there to wrestle with him, but once he was without me or his brother, they had to tie down his arms and legs to keep him under control.  He fought the restraints constantly.  He was furious.  He told me he would kill me if he could get those scissors on the drawer or a knife.  He begged me to take off the restraints.  

On the occasion that he was unrestrained for whatever reason, I had to be careful to stay on the defense.  He bit me, bit me really hard, punched me in the stomach (without the gloves), kicked me.  

I asked a girlfriend of mine to fill in the afternoon hours between my shift and Boone's brother's shift.  Boone told her he was going to spit this disease on her then she would die too.

All the while, the doctors are trying to figure out which med or mix of meds is causing this problem.  I told them he hallucinated at the hospital after his surgery when they gave him morphine.  They took him off morphine and tried other meds.  It kept happening.  What I finally recalled was Boone getting sick after being given codeine back in our college days.  It appears that he reacts badly to all opium based drugs.  After I talk to the docs tomorrow, I hope they will put him back on the Marinol rather than any of these other heavy duty drugs.  When they were giving him that before giving him morphine he was happy, hungry, and sleepy.  What more could we want?

Now he his back in his room at the transplant unit, so during my day off he must have gotten much better since they pulled all the pain meds.  That was Saturday.  I was going in today, but ended up sleeping until about 1:30 PM.  since he hasn't picked up the bedside phone and called, I figure he is still sleeping all those drugs off.

I needed an extra day of rest too.  It was a wild ride, now it's time to see some engraftment.  

1 comment:

Jeri said...

Yes, it will be a great day when you begin to see those signs! Praying it's soon!