March 1, 2013
DAY ZERO
Hi Pauline here.
Well after a night if lots of pills and some vodka, I did go to sleep. Lyla woke me up at 6:45. Good thing or I would probably still be asleep. Hope I actually get unfogged before the transplant.
I gather that the transplant is going to be here in his hospital room. I'll be here as will a few others. There's not much to watch, 3 small bags of juice and that's it. The lab tech was telling us yesterday that the cells will be defrosted only to a slush to be administered. They die at room temperature, so why don't they die in the body? Another question to ask. I had a cold blood transfusion once and it was not pleasant at all.
It is still strange to sit here with Boone, he's reading all his emails and blog comments; y'all keep those emails and comments coming, he's thriving off of them. Actually, I'm beginning to wonder if this is all just some strange dream...how can one be so sick and not sick at the same time? It doesn't make sense to me, but I'm certainly not complaining.
Dr. S just stopped by. We both really like him and are very glad we are here, and not in Seattle, for all kinds of reasons, and glad not to be at VU, just because. Nothing against VU, we just like it here, everyone is nice and on top of things.
Right now, I wish I had not done so much research into CMML. What you don't know can't worry you to death. Boone didn't want to know, so we really haven't talked much about it. I cannot bring myself to prepare for Boone's return to the condo for fear of it being bad luck to do anything before it is absolutely necessary...or maybe that's just the architect in me recalling so many hours, weeks, and months of wasted time doing work, not getting paid for it, and having it trashed because someone changed their mind for the tenth time.
The dogs seem to be getting over their complete confusion about the routine changes. This morning they all went to nap rather than walk me to the door. Leukka, Boone's omen, jumped on my lap this morning, wrapped her front legs around my neck and laid her head down. She held onto me for several minutes. Can the animals possibly know something is amiss?
The biggest laugh around here is Ms. D the housekeeping lady. Boone double dog dared her to get him a blow up doll for his pole, Mark O. Or maybe just a soccer ball with a face painted on it would be enough. Poles should be personalized, after all they are with the patients everywhere they go. One lady here has Mardi Gras beads all over hers. Hum, maybe that pink boa would be good. It would go with the hobbit feet very nicely, except we might need to change the nail polish color.
Well after a night if lots of pills and some vodka, I did go to sleep. Lyla woke me up at 6:45. Good thing or I would probably still be asleep. Hope I actually get unfogged before the transplant.
I gather that the transplant is going to be here in his hospital room. I'll be here as will a few others. There's not much to watch, 3 small bags of juice and that's it. The lab tech was telling us yesterday that the cells will be defrosted only to a slush to be administered. They die at room temperature, so why don't they die in the body? Another question to ask. I had a cold blood transfusion once and it was not pleasant at all.
It is still strange to sit here with Boone, he's reading all his emails and blog comments; y'all keep those emails and comments coming, he's thriving off of them. Actually, I'm beginning to wonder if this is all just some strange dream...how can one be so sick and not sick at the same time? It doesn't make sense to me, but I'm certainly not complaining.
Dr. S just stopped by. We both really like him and are very glad we are here, and not in Seattle, for all kinds of reasons, and glad not to be at VU, just because. Nothing against VU, we just like it here, everyone is nice and on top of things.
Right now, I wish I had not done so much research into CMML. What you don't know can't worry you to death. Boone didn't want to know, so we really haven't talked much about it. I cannot bring myself to prepare for Boone's return to the condo for fear of it being bad luck to do anything before it is absolutely necessary...or maybe that's just the architect in me recalling so many hours, weeks, and months of wasted time doing work, not getting paid for it, and having it trashed because someone changed their mind for the tenth time.
The dogs seem to be getting over their complete confusion about the routine changes. This morning they all went to nap rather than walk me to the door. Leukka, Boone's omen, jumped on my lap this morning, wrapped her front legs around my neck and laid her head down. She held onto me for several minutes. Can the animals possibly know something is amiss?
The biggest laugh around here is Ms. D the housekeeping lady. Boone double dog dared her to get him a blow up doll for his pole, Mark O. Or maybe just a soccer ball with a face painted on it would be enough. Poles should be personalized, after all they are with the patients everywhere they go. One lady here has Mardi Gras beads all over hers. Hum, maybe that pink boa would be good. It would go with the hobbit feet very nicely, except we might need to change the nail polish color.
Boone will blog ya later.
6 comments:
I posted a longish comment that disappeared somewhere into Blogger! So I'll just say I'm looking forward to hearing good news over the next days and weeks. I linked to another great blog about a lady's BMT experience: http://kathyandkelliefightcmml.com/
You may already know of it. I have emailed with Kathy lately, she's 9+ months out from her transplant and doing great.
Praying for you guys, as I know so many are. Keep on!!
I just keep thinking... DADDY would love the leash and the hat you hooked up to Mark O.
I hope my blood treats you well. Glad to hear it turned to Big Orange.
I'm still working on the MILES. Send yours & Pauline's into 4MMiles.
Donor
So thankful to have my computer back up and running. I have been studying my missed days for you and Pauline to bring me up to speed. I feel like giving two thumbs ups and a big smile of relief for where you are now. Some of the descriptions take me back to the days when you talked about taking care of "Daddy" and the bathroom issues and of course I answered telling about some of my days with Mr Bobby. Now you talk fo Mark O. Honestly, I am reminded of my daughter at age 12 when we had to introduce her to her first hearing aid. Hearing aids then were not like thay are now. No, hers was a little gold colored box about the size and shape of a Zippo Lighter. A cord was attached going from the container to both her ears. My pretty little Girl Scout knew she had to wear that to school and everywhere she went throughout high school. We partially hid it by my sewing a little pocket in all of her bras so it only the cords and ear molds showed. She also named her [forever present] "friend". The name she chose was Charlie. I never knew why. It helped to give it identity. Of course, by the time she graduated Southeastern Louisiana College, She did not wear it any more because by that time hearing was completely gone. I still have Charlie among my memories in my cedar chest. Incidentily Robin Roberts graduated from our local SLU. She also attended our Ponchatoula First Baptist Church when she was in school here for her home away from home.
I don't have a monitor for my steps but I can say that on Monday, Wednesday, and Friday I can count the steps as I walk twenty minutes on the treadmill. Those twenty minutes will go much easier when I know they are being walked for you, my friend.
I was hoping to find 6 persons to Robin... Stella... Do you have contact with her.
We are up to over 500 as of church this morning. I will add your mile.
Someone, get us to Robin...
oh, and Hi D.Boone... Glad things are going as well as they are. Sorry for your UTI. Part of womanhood.
Donor
Donor, I have never met Robin so I am not in touch with her, however, I have a couple of ideas as to how to get someone to reach her. No promises but I am working on it. Will do what I can.
Tomorrow is my workout day, I will dedicate it to Boone.
I went to my work out this morning. The treadmill does not give the number of steps instead it tell the laps which amounted to 3/4ths of a mile. I usually walk for 20 minutes but today I added 5 mor for Boone. I also did my usual deries on the Shuttle with 5 lb resistance. Whew. Then to the 5 lb bar for a series of prescribed exercises... followed by what I call toys to strengthen my hands. It all works because now I do not fall like I was doing this time last year and I can remove the collar I have for my little dachshund. I use an invisible fence to keep her in the yard so when I need to walk her, I need to remover the collar to cross the safety field. Anyway I was active for 1 1/2 hour this morning. I will repeat the process on Wednesday morning.
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