This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.

Friday, March 29, 2013

Day T+ 28 and counting....

I had feared this day.  The biopsy report would be due, Boone's numbers have been steadily going down.  Dr. S looked like he was very worried last time he was in.

The news is, Boone is, repeat is, engrafting.  He's just out on the far side of the Bell Curve for his timing.  His marrow shows that the stem cells have begun to take up housekeeping.  They are just being very slow.   My guess is Boone's age plus his reacting to every drug they use, and having a severe (in my mind) reaction to the last bag of whole blood.  Doc said that's what caused the injury and damage to his lungs.  I guess that was the last trip to the ICU, where they had to jump start him.

He is better in that he does know what's going on 95% of the time.  He's very tired.  He needs help to eat just because it wears him out so.  This morning no breakfast, but I got him to drink apple juice and eat a 4oz. cup of peaches.  Now he's sick at his stomach and getting meds to help with that.

He promised he would do everything he was asked to do, including eating and exercising.  Today he did make it down the hall and back with the lovely Jeanna, his PT assistant, with a walker and of course the IV and O2 tagging along.

Lunch was difficult.  But at least there was ice cream.  He ate every bit of it.

So as far as engraftment goes, Dr. S is "encouraged".  I could tell he was happier about Boone since he read the biopsy report.  So far, no real infections, still taking antibiotics by IV.  His neutrophil count was 0.1; white ct 0.5.  

He is trying to sleep now.  Maybe things are starting to look up.

4 comments:

Anonymous said...

QUICK GET MORE ICE CREAM! Let David know that I am missing him more than I can even express, and everyone at the office does too. Maybe a good sleep will help (usually does for me) and then things will turn for the better.

Cheryl

Jeri said...

Sounds good, Pauline! Looking forward to better and better. :)

Anonymous said...

Maybe this is the end of the low point. He can start going up now. Ice Cream... We only got Ice Milk growing up. I bet when he is well, he will never want peaches again.

Donor

Harold said...

He's getting to be like Mom. After he had swabbed his mouth and the nurse hung his meds, he basically dismissed us. Said he was going to sleep and actually seemed to be sleeping pretty well. I can't tell you how suprised and how happy I was about the biopsy results.