Day 82 and counting...
Pauline here. Still in the hospital. No results yet from yesterday's CT scan and colonoscopy. Trying to find that bug has proved to be pretty tough.
Not sure where Boone is. He's having those reactions to the drugs again. He's been lying here all morning talking to a bunch of people on the telephone. Not sure where the phone is, or who he's hearing, but he's definitely busy. He's set up a couple of meetings, canceled one, talked to someone about how they doing are after their father's death. Alright I hope. The discussions don't seem to be particularly about work anymore.
I'm afraid he's going down that delusionary path that sent him to the ICU the first time. He started talking about having scissors again.
He called me at 4am wanting to know where I was. He was having issues figuring out what was real and what was not. The phone call ended in mumbling and then he just goes away. No goodbyes, just silence. He seems very worried in these middle if the night calls...there have been 3 so far. I'm fearful that the delusions will go from merely confusing to monstrous and scary. So far, no freakish looking eyes.
They are bringing him some solid food today. He thinks he hasn't been taken of NPO status, but tried to eat a bit anyway. Finally something tasted really good...the packaged OJ. Then he tried a spoonful of Rice Krispies. Then vomited only a little. He thought that went pretty well and wants more OJ.
We are waiting on the doctors rounds. I need to talk to them about his mental state again and find out what results if any came from yesterday's tests.
Overall the IV feeding has really improved his appearance and strength. But beyond that, I'm not seeing much improvement.
My journey through Chronic Myelomonocytic Leukemia. Or "How to Cure Psoriasis the Hard Way."
This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.
1 comment:
Oh Pauline, I'm sorry. Can't say more but I care deeply.
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