This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.

Wednesday, May 15, 2013


May 15, 2013

DAY 78 – MORE FUN TO COME
 

I’ve been having nausea and diarrhea for the last few days.  We saw Dr. S yesterday and he says it may be GVH, Graft Vs. Host disease.  GVH is common in transplants.  I’m hoping that this will be a mild case since I had a sibling donor. 

Typically GVH manifests itself in the skin, rashes and such.  My skin is doing great but digestive track, no so well. So tomorrow I have a full GI series.  They will look down my throat and up my stoma.  The stoma is the nipple created protruding from the abdomen to replace the rectum. I’ve have mine since the emergency surgery back last September.  The surgeon, Dr. R, refers to my stoma as a ”beautiful nipple”.  I’ve had colonoscopies before, no big deal, just get the injection and sleep. They do their thing and you wake up groggy.  I confess it might be interesting to be awke this time because they will be going in the stoma instead of the “regular” way.  I say interesting and it would be except that there is no way I’m staying awake for one of these procedures.  That would too strange, painful, weird, creepy, etc.

So today I’m doing the fun part, the prep for the procedure.  Most of you I’m sure know that this means drinking a half gallon of a mixture that cleans you out.  Really cleans you out.  Everything has to be clear.  The GI guys are picky that way but having heard tales of folks not cleaning before the procedure I can understand why.

We go back to Dr. S on Friday to get the results.  I’ll keep you posted.

Thanks for stopping by.

 

Boone

                                                             

5 comments:

stella said...

Oh Dear Me! Sigh. If its not one thing with you its another. You are getting the most thorough fine tuning of any system I have ever heard of. Your machinery will be well inspected and greased and oiled. 100% A-OKay when they finish with you. Determined critters, aren't they? Stay with these people, they know some stuff. Thanks for the Broadcast.

I'm laughing at the letters I need to enter to prove that I am not a robot. They are; 'volume porta !V.' How's that for a match to you for this day of preparation. smile

Anonymous said...

Thanking of you daily. I will write more after school is out. Enjoy the drink... (such yucky stuff!)

love
Donor

Anonymous said...

Prayers headed your way. Hope everything is fine and the GI issues clear up soon. Keep us posted and hang in there.

-B

Anonymous said...

@stella

I too was laughing at that. Mine were 'hopeful asylum' lol.

-B

Jeri said...

Aw, sorry to hear about the GVH/ intestinal tract stuff going on. It is indeed common, I understand. The medical community is amazing in handling all those issues as they come up. Thankful for them! Still praying for you, hope you feel better soon.