Not very pretty but it appears to be a surface clot, not something worse. The program is to keep a close watch on it to make sure it does not get infected or abscessed Either would be a bad thing. The Optometrist did say that he would be back to check on it .
They took me down for a CT scan on the eye and found nothing to indicate infection so I think we have another incident unrelated to the GVHD but another thing to keep an eye on (no pun intended).
The girl from PT came in about 10 and with her help I did manage to get in a half lap. It was slow but fairly steady so maybe I can get back on track with the walking. Also I should cut her some slack for what I said yesterday. She remarked that she was glad we did the lap so she would not get "barked at". I'm not sure exactly what that means but there is no reason for me to cause her grief for just doing her job.
After lunch I fell asleep for a while, not sure how long but I work up about 2:30 to intense pain in my lower back. We're talking at least a 9 on their 1-10 scale. I was just short of screaming. Of course the machine did not want to turn loose of any meds so I writhed and moaned for what seemed like eternity but was probably more like 20 minutes. Finally the machine gave in and I got some pain medicine. It took effect while I tried deep breathing. Nurse G go me a hot pad and things slowly settled down. The got me a muscle relaxer and as soon as I could I got another dose of the pain meds. Right now the pain is down to 2 or so. No idea why the sudden attack of pain. I wonder if it was just a build up from all the straining when I've been trying but unable to stand up to get out of bed. Interestingly I have been able to stand a bit easier this evening. Not sure if that's a good or bad idea but I have to get to the edge of the bed to pee so I may as well try. In any case I'm about another hour from asking for more pain meds.
So on the whole another interesting but not pleasant day. But I shouldn't complain to much. Nurse T is on tonight and she has a migraine headache that she has had since 3 o'clock. I could never have some to work like that but if she had not told me that she had one I would never have been able to tell anything was wrong. Bless her heart.
Boone
3 comments:
In the midst of strong healthy people. I promise you, Boone, they will survive your outbursts when you see things going in a painful direction. Fear may be part of it and I might add, a helpful part. If you keep your feelings to yourself, no one will look to the cause. Yell out or be impolite. It gets results and probably brings you closer and with more understanding to everyone. Celebrate the lap you made. Hoorah! ONe step leads to the longest journey. I'm so proud of where you are now. Dr S will be too when he returns. The eye? It will continue to be very 'not pretty' for a while as it fades and then when the redness is gone, the discoloration will continue until one day it will be a thing of the past and you wonder where the color went. Remember the Squeaky Wheel? Yes, it gets the grease....
Ah, I hope your back is better by now, and glad your eye problem seems to be something that will improve on its own. These doctors are pretty smart. Glad to see you could get around and walk a bit, as well. Hoping for good results with the photopheresis!
kisses, dboonie
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