Well the day started out early. Woke up about 3am. I knew I was getting platelets about then so I laid there a minute. Noticed my hip felt wet and upon checking, sure enough, the ostomy bag has leaked a bit. Just a bit so I called Nurse E and we got the bag changed with almost no mess. Nurse S is not familiar with the procedure so she came into watch. The stoma has some sore areas around it and was particularly sore after the cleaning and rebagging so I got some pain meds and went back to sleep.
PT nurse came by and we went for a short walk. I'm still weak and to be truthful not exercising like I should. I have to do better and I will. I've just been down lately knowing that I'm going anywhere anytime soon. I'm not depressed, I don't think, I've just got to get that more upbeat attitude back. Getting put back on NPO this morning didn't help but Dietary screwed up and brought me lunch anyway. I was pretty good boy. I only ate the popsicle. Give me a few days maybe and I'll be back to speed. It's not really a choice, it's a have to.
Nurse T should be here in a bit for my photopheresis. Not exciting but something to do. It's loud and I'll probably get a headache but they'll give me pain meds if I do and I'll sleep well.
Hope you are having a more exciting day than me.
Boone
4 comments:
I started Today to get back to my exercising routine. So If I can start today, you can too. Did you get your Green Exercise Bands?
Glad you feel up to writing. That is a great sign.
Love
Donor Girl
Been following your progress through Donor Girl, and now on your blog. Praying for those platelets... I've had problems with them, too. Had open heart surgery a year ago this month (25th) and the best thing I did was to keep up with the doctor's exercising orders. Here's to getting back on track! You and Kathi inspire me! Have a cherry popsicle for me, when Dr says you can.
David,
I wanted to talk about my faith. It's not complicated. Do you remember the old hymn "Where Could I Go?" Needing a friend to save me in the end. Where could I go but to the Lord? I have tried other stuff, wine, women, song, $... and none really worked for me. That is it in a nutshell. Talk to you later. SKF
Indeed Steve I do remember the song. It is a good one and I know that know man is an island and everyone needs support. Having said that I believe that in the end the place you have to go is to yourself. I understand the concept and the reasoning behind turning everything over to the lord but that doesn't work for me. To me that bailing out or giving up. To me that "Jesus take the wheel" song is about the dumbest thing I ever heard of.
Be happy to continue the conversation via email if you want. I don't think either of us will convert the other but I do enjoy the debate.
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