Today started early with meds and feeling weak. They bumped up the steroids and that makes you weak especially large muscles like the hamstrings, makes it hard to standup. Dr. F made rounds about 10. No new results from the tests. He did confirm that I would go back on the GVHD1 diet after the afternoon ultrasound .
As it not unusual we had to wait on some meds from the pharmacy to start the photopheresis. Didn't get started until about 12:30 and done about 3. Then it was off to ultrasound. The tech was, once again, a very nice interesting lady and we had a great conversation while she worked. I didn't press her for any conclusions as she isn't supposed to offer any opinions. Hope to hear something tomorrow.
Back in my room I was welcomed by clean bedclothes and meds for the headache brought on by the photopheresis. I'm really bad at headaches so I was glad for that. Also there was supper, GVHB1 diet but food none the less. There was no popsicle but Nurse J managed to dig out. Literally dig out as someone had spilled something in the freezer.
Kathi also had a pretty good afternoon. She finally slowed up and bit and walked around her yard to enjoy her hard work. She sounded great when we talked on the phone earlier. I was so glad to hear her sound that way.
So on the whole a pretty good day. Tomorrow starts with the early meds and breakfast. Granted it will be chicken broth and lemon jello but at least its food. Here's hoping it's another good day for all of us.
Boone
3 comments:
Glad to hear this! Thinking of you!! B and H
Awesome. I hope you continue to gain ground on this. Even if the steps forward are short and infrequent, I'd prefer that over any backwards momentum. Keep up the hard work. We keep praying. Tell Kathi we said hi. Miss you both.
- B
P.S. Your move...
Looking up, Boone. I once (college) mixed lime jello with castor oil (or something disgusting like that). Never could eat lime jello again. Lemon, however, is my favorite, so I take that as a good sign!
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