Last night Nurses J and A were on duty and about midnight were taking my vitals and since I had to urinate, which I prefer to do standing, decided to check my weight. For some reason my body decided at that moment that it was too weak to stand or do much of anything else. Turned out it was a blood sugar issue. We decided to weigh later and they proceeded with meds and other nursing stuff. My back was hurting so after getting some pain meds I went to sleep about 3AM. I'm not sure how much longer they worked because I didn't wake up until the weekend Dr. woke me at about 9. My blood sugar had gone very low and I was shaking all over. It was a very strange sensation. Nurses A and L worked to get my sugar level up while I lay in bed and shaking like I had bad Parkinson's. Breakfast had arrived while I slept but I ate what I could but my hands were shaking so bad it was hard to get the food in my mouth. Finally after a lot of meds and juices the shaking settled and eventually cleared up. My sugar levels have been running high since then so I've had quite a bit of insulin today as well.
On the steroid front it turns out that you can't DC (discontinue) them all at once but they have lowered the dosage. II was so out of it this morning when the Dr. came by and forgot to ask if that would continue and if so at what pace. That answer may very well have to wait until Dr. B is back Monday.
She'll never know but I'd like to offer Cokie Roberts my condolences on the passing of her mother. Also my condolences to all of us on the passing of J.J. Cale. My both of them rest in peace.
Boone
My journey through Chronic Myelomonocytic Leukemia. Or "How to Cure Psoriasis the Hard Way."
This is Pauline, Boone's wife. Every year on or near his birthday, he has his annual physical. His doctor told him that he had "Immature blood cells" and referred him to a hemotologist. To Boone's great surprise when he arrived for the appointment, the hemotologist was an oncologist. They drew blood and the Oncologist, Dr. K, wanted to know why I was not with him. Next visit he said, I better be there. A month later, we went to the appointment. Blood was drawn. Dr. K. said it could be a couple of things, and ordered a bone marrow biopsy. On the 3rd month, we heard the diagnosis of CMML.
3 comments:
Sorry to hear of your crazy day. I pray for everything to settle down a bit.
Thinking of you hourly
Wow. Hope things settle down. Turns out throat thing was trama from something I ate. Go figure. So will try to come by this week.
Sorry about the awful episode. Tomorrow is another day, I hope you did not lose too much strength. Try to get some rest.
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