Another pretty slow day. I woke up about 5AM for blood work and wound up staying up for a couple of hours. Thus I was still lying in bed when Dr. S came by on rounds. Nothing new. We are both doing everything we can do but I'm still in bad shape. But he has seen people worse off than me get better. From my point if view I have no choice, exercise and attitude. I confess that I'm not doing so well on either count lately but I did get one lap in today and I'm doing more with the rubber bands.
Not doing as well on the staying positive front. I'm still hopeful about the photopheresis. Had a treatment this afternoon and another scheduled Wednesday afternoon. If its going to work it should be showing up soon but so far that hasn't happened. If this doesn't work then I not sure what we try next. But we'll try something, no point in giving up.
Boone
8 comments:
I know it must be really hard to stay positive but keep it up I think it is some of the best medicine. I will try to come by with pictures from trip this week.
hey, dboonie...dropped off a package for you this morning and left it in your chair. You were sleeping so didn't want to wake you.
Keep fighting. I appreciate your honest words.
Do you ever listen to Radiohead?
I'm sure it's hard to say upbeat, but it is a good Med.
Walk those laps... We all want these bad days to improve.
Laps and smiles will help.
Wish I had something funny to say... just think of the stupid things I do, that usually gets you smiling.
Donor Girl
Cancer humor that I found on-line:
Real Doctors Notes
1. Patient has two teenage children, but no other abnormalities.
2. Patient has chest pain if she lies on her left side for over a year.
3. On the second day, the knee was better, and then on the third day it disappeared.
4. The patient is tearful and crying constantly. She also appears to be depressed.
5. Discharge status: Alive, but without my permission.
6. Healthy-appearing decrepit, 69-year-old male, mentally alert but forgetful.
7. The patient refused autopsy.
8. The patient has no previous history of suicides.
9. Patient has left white blood cells at another hospital.
10. Patient's medical history has been remarkably insignificant with only a 40-pound weight gain in the last three days.
11. She is numb from her toes down.
12. Occasional, constant, infrequent headaches.
13. I saw your patient today, who is still under our car for physical therapy.
14. Skin: somewhat pale but present.
15. The patient has been depressed since she began seeing me in 1993.
Hey Boone. You don't know me but I'm a friend of Harold's. I think you and I met about 20 years ago at some gathering. Harold just turned me on to your blog and I'm anxious to follow you.
I want you to know how much I care for you and Harold. I've seen many loved ones through cancer so I'm not unfamiliar with your situation, yet each illness is so individualistic. I can also only imagine your emotions and your resolve. Just know you're loved even by people you barely know. We want you to live.
Yo man. A very late night at office. Pushing the deadlines you know. Keep walking and getting out of the bed man. Has to be hard but I know you can do it. Fight hard. After all of this there is a bar in Denver we should go visit.
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