This is a post that I'm not sure I should write. For one thing it is early in the day, 11:10 in the morning. I'm about to start the photopheresis treatment. Things are going well. My ostomy output is down. The billyribbon count is down. Both good things. Dr. S came for rounds and is still up beat, in part because he is headed out for a two week vacation.
Today he actually used the words "out of here". Specifically he said he'd like to see me out of here by the time he got back. Kathi asked if he really thought that was possible. Response was, possible yes but highly unlikely, but at least he broached the subject. Now before any of us, especially me, get too excited this same man two days ago used the phrase "dying in the hospital" so I am by no means out of the woods yet. Maybe just approaching a clearing. And "out of the hospital" mostly means that the treatment becomes outpatient. It most definitely does not mean well but I think it would go a long way toward helping me get farther down that road. The key to it all is that I have to get stronger and the ostomy output has to get lower. I have redoubled my commitment to getting stronger. It is just the rubber bands right now but I'm trying to do them several times a day. I don't have the strength or stamina to walk lamps but I'm going to get there as soon as I possibly can. So send me you strength and commitment vibes and prayers. I'll do my part and we'll all hope my body starts absorbing the food.
Cautiously but optimistically yours,
Boone
6 comments:
dboonie....
:-))
Boone, YOU GOT THIS :) You have the right attitude, a big heart and the determination to make it out of the hospital. Were sending tons of positive thoughts your way!!!
Jeremy got good news yesterday......they have 4 possible donors and are doing more test to determine who will be the best match.
Have a good day! Amanda
When my second grandson started to school, I was so amused at the motto on the front of the school shirts. Here was this small six year old proudly proclaiming for all the world to see, "We do our best and The Lord does the rest". I still laugh when I remember but I think of you as you begin your first small steps the same as he did.
Great news Amanda. Please keep us posted.
Oh so hopeful that you get home. I know that will make you feel better. Just returned home Thursday night and was coming up this weekend but instead it looks like a trip to doctor. Will wait to see what is wrong with my throat before I visit, but am constantly thinking and praying for you.
Totally agree with the "You got this" post. Think positive, positive, positive. Remember, tunnel... not cave. You ARE going to get through this. (...and when you do, we need you back!!!) LSM
Post a Comment